Neurapraxia & Paresis, or Why I Still Can't Talk

Remember back to before I found Gumball, and I had to have neck surgery, and I was left horrifically disfigured (according to Rosie Perez), and then the doctor got concerned about my persistent hoarseness, and referred me to the ENT?

Well, I finally got the appointment with the ENT, and boy, did I have fun! A week before my appt, they sent me an eight-page history form to fill out, as if I was signing up to receive a lifetime of ENT care from this dude - I absolutely cannot believe the unbelievable lengths they went to to ask me all sorts of absolutely, positively, irrelevant questions, for someone being referred for a post-op complication. But I filled it out.

So then I get there, and they want my picture for their electronic medical record (this, right after they photocopied my driver's license to insure I wasn't committing insurance fraud). So I refused - which I'm guessing from the look on the clerk's face NO ONE has ever done before - but could she not see?: I am horrifically disfigured - just ask Rosie Perez!

So, after waiting 30 more minutes, they finally called me back, and demanded that I step on the scale - again, totally irrelevant to the reason of my visit. Then the tech starts going through the 8-page history with me, because poor girl has to enter it into the electronic medical record (EMR), and she doesn't understand any of the big words I used! So sorry, little untrained technician, that I called my hernia repair a "herniorrhapy", etc, etc - because this part took another 30 minutes. (And the ENT really didn't need to know about my hernia, or my hemorrhoids, or my hysterectomy. Good grief.)

So tech girl finally finishes, and tells me not to worry, because my surgeon refers "tons" of people to this ENT for this very problem. HOLD THE PHONE - he told me I was only the 3rd one in all his years of having performed the surgery to ever develop the problem in the first place, and now there are "tons"?!?!
So I gave her my MOST sarcastic voice, and said, "My, THAT'S reassuring."

Then the ENT arrives (with tech girl in tow), so I took that opportunity to ask about the tons of referrals he's allegedly receiving from my surgeon for this "unusual complication". And he repeated the stats from MY surgeon - that I was only one of three. I bet tech girl invites me to her next Christmas Party!

Then he reaches behind himself and grabs a brown bottle with a long nozzle on it, and rolls closer to me and starts to aim the bottle at me, when I pipe up and say, "You DO realize I'm allergic to that". For I knew it was lidocaine, which I am very much allergic to -so much that I had listed it as #1 of my allergies on page 6 of the 8-page history form. So he leans around me to where tech girl is scrolling through my EMR searching for the allergy portion, which she displays, and he stares at it like it was some lie I'd pulled out of my ass just to screw up his day. Then he started to interrogate me in this patronizing voice, trying to determine whether in fact I was truly allergic to lidocaine, or maybe just didn't like the taste of it, or what, exactly? Seriously - what do I gain by being allergic to the most commonly used topical anesthetic? But I gave all the correct answers (whew!), and he put the bottle down, and I told him that my other doctors dealt with this by using marcaine or carbocaine, usually.  He says he doesn't have anything except lidocaine.

So he whips out the laryngoscope (basically, just a much shorter version of a colonoscope), and tells me that when he was a resident, he had to perform this procedure on himself numerous times without anesthesia, and it really isn't that bad.

And he passes me a hand mirror, and shows me how to sit so that I can watch the whole thing on TV. Woo-hoo!

And he starts passing the scope up my nose and down my throat, and of course I'm coughing and gagging and tears are streaming out of my left eye, and he is assuring me that all this is normal, and giving me little instructions like "cough," "swallow," etc - in between all my coughing and gagging. And all the time, he is narrating this like it's the "It's a Small World After All" Ride at Disneyworld. "and here on the left you see your normal left vocal cord," etc.  And all the while he is calling out stuff for tech girl to enter into the EMR - sounded like a few big words, too - so no telling what really went in there.

But alas, while I have no vocal cord polyps or nodules, my right vocal cord is about 99% paralyzed. Not 100% - he saw a minute amount of movement. So the technical term for what I have is (extreme) right vocal cord paresis (weakness).

And this paresis is due to intra-operative damage to the right recurrent laryngeal nerve, probably during some cauterization of some bleeding during the surgery.

And then, having given the tour and determined the source of my problems, he removes the scope. And I choked out the words "you DO know I'm a physician, don't you?" Well - seems like in all those 8 pages of history, THAT never came up. So he says "No", and then asks what type of physician I am, and then asks if I have ever seen a laryngoscopy before (yes).

So then he proceeded to outline the 2 possible surgical repairs of this condition (neither of which would be considered until after the normal healing time has expired), and neither of which sounds like fun. In one, I have to go into the hospital for outpatient surgery, and they would pass the endotracheal tube down my throat, and I guess a laryngoscope, and visualize the cords, and then he would inject Restylane (the collagen-like substance that women (mostly) get injected into the wrinkles on their faces) into my poor paretic right vocal cord, thus plumping it up and allowing it to meet the left vocal cord in the midline, so that normal sounds can come out of my throat. There was no discussion of complications, or how often I would have to have this done (I know women who use Restylane have to keep getting the injections in order to keep the look they achieve with it). - no discussion, because it isn't time yet!

Option number 2 is also outpatient surgery - and had a really long name, but basically it involves going into my neck surgically from the front (he thinks he could use my horrific Rosie Perez scar, though, instead of making another horrific scar on my neck) and then inserting a piece of Gortex right next to my poor paretic right vocal cord, thus pushing it over to the midline. Permanently, I guess. Again, no discussion at this time, because I still have lots of healing time on the clock!

The technical term for my condition, in the ENT's professional opinion, is "neurapraxia," "an injury to a nerve that interrupts conduction causing temporary paralysis but not degeneration and that is followed by a complete and rapid recovery" ("rapid" being an extremely relative term). The recurrent laryngeal nerve, according to the ENT, regenerates at a maximum of 1 mm per day, and the damage is approximately 70-80 mm from my vocal cord, so it could be as few as 70 days (from the surgery) until it heals, or it could actually be up to twice as long as that, if I am a slow nerve regenerator. 70 days would be on Sept 2; but that is the best chance scenario. 160 days is December 1.  He wants to see me back for a repeat laryngoscopy (without anesthesia!) on September 13. But here's the deal, if I am still hoarse (even if I am somewhat better) on September 13, he will do the scope again (oh joy) and then tell me that I still have a bunch of healing time left - and set another re-scope date. So I am going to watch this thing, and if I am not 100% back to normal by September 13, I am going to reschedule the scope date again, and again, and again, until it is past December 1, and then he can take another look.

It was really a pretty traumatic procedure for me, and I'm sure he has bills to pay and all, but I cannot see what I personally have to gain from being scoped until the time is up. Plus it ain't free, even though I have insurance! And I will ask to forgo the mm by mm detail of my throat's anatomical structure on the next scope, which should make the procedure last about 25% of the total time it did this time.

Doctor's visit, and a New Bracelet

And the two have NOTHING to do with each other.

But 1st, the weather. We are having the MOTHER of all thunderstorms right now. Big booming thunder, pouring rain (that sideways kinda rain), low rumbling thunder, and lots of lightning. So far, the power has only gone out once, and that was brief.  It has been very overcast all day (but still 96 degrees, of course) - but at 4:30 I noticed that there was suddenly no light at all in the bedroom except from the bedside lamp (and the computer, and the TV...) - I looked at the windows, and it was just pitch black outside. And one minute later, the storm just seemingly came out of nowhere, full blast. Naturally, Bailey is now in hiding in my closet.

OK - Now the story about the new bracelet:

Future bracelet, 10 AM, Sunday, 7/11/10 - these are 16 gauge sterling silver rings made from square wire:

Bracelet, 3PM, Sunday, 7/11/10. This is the tryzantine (trizantine) pattern, a variation of the more well-known Byzantine pattern, using 3 rings at a time instead of 2 (that's a fairly basic over-simplification). I love how just changing from rings made from round wire to those made from square wire can completely change the look of the finished piece. And those of you who know me well know that my motto (for almost everything) is "the bigger the better" - so I am always going for the heavier gauge rings, and the wider weaves.

Different view of my new bracelet: There is no clasp yet, because I forgot to bring any home with me from the shop. So I will add a clasp tomorrow, and tumble it, and as they say on Etsy, "wallah!"**  I will have a shiny new bracelet!

I learned this weave in school last month - but it was a really quickie lesson, and I only made up one tryzantine unit, and packed it away with the rings, waiting for the opportunity to start in on it when I felt a little better. And I had left the handout directions at the shop - because who needed them? Well, I'll tell you who: ME. Because I am no longer 22 years old, and evidently can't remember what I had for lunch yesterday, much less directions to a new chainmaille weave I briefly worked on 5 weeks ago. So I spent about 2 hours on the computer yesterday trying to find a free tutorial, and finally, "wallah"! And I was able to make the bracelet.

Oh - and speaking of Etsy - I have many, many new listings in my shop - things I have made over the past 2 years and never gotten around to photographing (ugh) and listing. I spent all day last Saturday (7/3) photographing the stuff, and most of 7/4 and 7/5 doing the listings, and I have been gradually adding 1-3 items a day to my shop. Still have about 40 things to add!

I saw the THHS (Tall, hot, handsome surgeon) for my first post-op visit this AM (cue the tiny violins: he was in Cancun, lying by the pool, last week. And yes, I was eavesdropping as he was telling one of the nurses about his vacation as he was running between rooms, seeing patients. What of it?)

THHS says I am healing wonderfully, but he is very concerned about my persistent laryngitis/hoarseness. On the day after surgery, as he was discharging me from the hospital and explaining stuff, and telling me he would be putting off my normal 1-wk post-op visit until 7/12 because he was going to be "on vacation" blah blah blah He told me that I would be hoarse for up until 3 weeks, and not to worry. So, I haven't been worrying, because the 3 weeks isn't  up until 7/15.

But upon hearing, or NOT hearing, as the case may be, my voice this AM, he told me that he was concerned, and that in all the years he has been doing this surgery, he has only had 2 patients who had ultimately required cortisone injections INTO THEIR VOCAL CHORDS to restore their voice.

Excuse me - into their vocal chords? And as he is telling me this, he is miming a giant needle going in through the front of the neck - so I guess it is done under fluoroscopy? Who knows...

Then he says, and I am NOT making this up: "Why does everything weird always happen to YOU?"

Gee,.. THHS thinks I'm special! ♥

So he started me on high dose steroids to try to reduce the inflammation (woo-hoo - here comes the mania again!), before we start driving needles into my neck, and is standing up to leave -- because he is so far behind because of having been on vacation last week, boo hoo hoo ... and I told him that I had a few questions -

So he sits back down, and answers all my questions - one of which was about returning to my daily walks. Because Bailey and I had been walking 3 miles a day every day up until the day of surgery - and while I am not ready to do 3 miles tomorrow, I wanted to know if I could start walking again.  Except that last week, I suddenly developed this killer pain in both my heels - it's there when I get out of bed in the morning, but only when I step on the heel, and goes away after I have been up and walking for about an hour. But OMG, it is some bad pain - and stairs are the worst.

So he diagnoses plantar fasciitis. Great - that little devil can be a real bitch.

But he tells me that I developed it because I had been really working out my feet on those long walks, and the inactivity for the last 2 weeks is the cause, and that we have caught it early, and that the high dose steroids he prescribed for my voice will also fix the plantar fasciitis. And that I should wait one week, and then very gradually start building up my walking again.

And I am to call him in 2 weeks if I still have either the hoarseness OR the heel pain.

THE END.

**Yes, I know how to spell "voila".

Surgery over, and I am fidgeting at home

Just received a nice comment from my buddy PD, and since I am up and fidgeting around, I decided to go ahead and post.

Surgery was Thursday, and went well according to the doctor.

He discharged me from the hospital yesterday at 7:30 AM, but the nurses didn't get around to actually getting me out of there until 11 AM. We had to go to the hospital to get my meds filled, and were home around noon.

I have a real sore throat - partly from the breathing tube, but according to the doctor, mostly because a lot of scar tissue had accumulated around my windpipe from the previous surgery, so he spent a lot of time in that area vigorously cleaning out the scar tissue, so I may have a sore throat for up to 3 weeks. I know I have an unbelievable case of laryngitis - no one can hear a word I say, and it feels to me like I am screaming at them.

My fried Kathy has been staying with me - it was her husband who came down (with Nummy) and took care of me when I was really hurting last month. Kathy taught a few classes at my shop earlier this week, and then went into caregiver mode for me, but I am so used to being on my own, that she is pretty bored! I know she's ready to get back home, too. She'll be heading back to the mountains tomorrow.

So not a whole lot to report yet - I'm taking my steroids (to reduce the inflammation) and dilaudid for pain, although I'm not really having much, other than a slight headache. And I am putting cortisone on all the allergic reactions I am having to the dressing they put on my neck, that they swore to me was hypoallergenic and could not possibly be burning me in the middle of the night on Thursday after surgery. So they refused to remove it, and when the nurse took it off at 10:30 yesterday AM, it was blistered and red everywhere, and looks like a bad poison ivy today. And feels worse.

But I shall live to blog another day -thanks for everyone's thoughts and concern, and thanks for asking, Pam!

Doing a little better

Surgery is scheduled 6/24 - lots of things to get settled before then.

The pain is a little better today - maybe the injection is finally kicking in. I need to go put some ice on my neck and arm, though.

Thanks to everyone who contacted me after my last post - it really is better today.

Really, KM.

And I let my best friend's husband go back home this morning - he was such a tremendous help to me - someone should open up a "Lend a Hubby" business - I think there is a market there!

My Terrible, Horrible, No Good, Very Bad Day

Another update, and then I just really never want to speak of this again. I never want to think of it again. Can't it just please be over?

I had a really, crappy, bad week last week, as any of my readers know, and lots of my Etsy forum friends have been staying in touch. Thanks, guys!

And life happens, you know - because small business owners have little choice but to keep the show running, and I am basically a one-woman show, so I had to be at the shop everyday last week, and I also had a day-long specialty class yesterday (Sunday) - so it was a hard week.

My best friend actually send her husband down here from North Georgia on Thursday after I had called her Wednesday night to just to vent - I had been keeping all of this to myself, and she was furious, and sent him to help me with driving, and lifting, and just ordinary stuff. And I just had no concept of how this could help me, until he had been here for a few days - you know, I have lived alone since I was 17!

But with John here, I was able to actually take my pain meds at near-normal doses - I say "near", because if I took the actual prescribed doses, I wouldn't have been able to run the shop. But he drives me back and forth to work (driving is one of the most painful things for me right now  - the only thing MORE painful is trying to find a comfortable position to sleep. And no amount of drug is helping with that!).

So, after all the rigmarole that I went through last week just to get my PMS on the phone, I had my appointment with him this morning. John and I arrived about 30 minutes early, and they took me right back. PMS was outstanding, and took a lot of time listening to me, and examined me, and told me I needed to get an appointment with the surgeon, because this was no longer a simple pain management issue (duh). I told him I had already called, and had an appointment at the end of June (first available, according to the surgeon's appt. desk). Well, PMS said, "I don't think so - can you see him this morning?" I said "sure, but are you going to be able to do something for my pain?" He said, "Oh yeah - we are going to do an injection right now, but while you are changing into your gown, I am going to run down and tell the surgeon to work you in this morning."

So I got my injection, and then went for some X-rays (again - no waiting), and then went to the surgeon's office (all of these places are in the same bldg) - and after waiting maybe 45 minutes, I was in talking with tall hot handsome surgeon (did I type that out loud???)

THHS wants to do surgery the day after tomorrow - but there are some things that we just can't reschedule and rearrange right now, so the surgery is currently scheduled for 6/24. He said that if I could wait that long, he certainly could....

I was on a bunch of pain drugs and sedatives while talking to THHS, but I know we discussed the fact that since I already had one disc done (one level above the currently ruptured one,) and already have all this hardware in my neck, and since my neck had done such a fantastic job of healing, with beautiful bone remodeling and regrowth, that basically it is going to be one gigantic pain in the ass, and much longer surgery, to fix the new problem, because he has to remove all this beautifully grown-over hardware. And naturally, I am going to lose even more mobility in my neck.

And the worst part of the day for me is that the Epidural Steroid Injection I got this morning hasn't made one dent in my pain, so I am still miserable. Took a lot of pain meds once I got home, and tried to nap, but can't get comfortable, so I just sit up and cry a little and feel pitiful.

And I guess I eventually have to send my friend's husband home, too - he has really been a life-saver!

Pity-party over!!!!